Project

Deliberative public engagement on heritable human genome editing: South African & Flemish young adults

Code
G0AFX24N
Duration
01 January 2024 → 31 December 2026
Funding
Research Foundation - Flanders (FWO)
Promotor-spokesperson
Research disciplines
  • Humanities and the arts
    • Ethics of technology
  • Social sciences
    • Research, science and technology policy
    • Sociological methodology and research methods
  • Medical and health sciences
    • Public health services not elsewhere classified
    • Bioethics
Keywords
Culturally-Sensitive Public Opinion Research Heritable Human Genome Editing Deliberative Public Engagement
 
Project description

Via the method of ‘virtual deliberative public engagement’ we can gain insight into the public opinion on highly complex matters such as heritable human genome editing. In a previous study in the South African (SA) context, participants in culturally mixed groups who engaged critically with policy
questions on this topic based their arguments on shared values enshrined by the South African Constitution. However, since South Africa is culturally, ethnically and religiously diverse, it is possible that if people are given the opportunity to deliberate within their cultural/religious groups, other
(more culturally or religiously embedded) values would be used. This study will be applied to young adults in two separate language groups in SA (Zulu and Afrikaans) and one Flemish group. The aim is to find out how these young adults view heritable human genome editing and whether they use values that are comparable or values that different and more specifically related to their ethno-cultural backgrounds. For Flanders, this study provides
valuable first knowledge on the public opinion on this theme. Flanders also offers an appropriate comparator for the two other groups because its cultural demographics are vastly different to SA. This way, the study will gain insight into the public opinion in a more culturally-sensitive way and
offer a more nuanced understanding of how culture impacts lay people’s deliberation. The results will be applicable to future policy formation.